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About Me
- Gilly
- I am a parent of a child with Cystic Fibrosis. I don't go to work anymore. I was an administrator for many years but now feel I want to spend my time caring for my daughter. I have raised money for the cystic fibrosis trust through lots of channels from baking cakes to running the Hydro Active Challenge, and will continue to raise money and awareness as long as I can.
2 comments:
ARGH!!
Let me know when it's time to go to the papers ;) xx
Thank you. We are going to appeal again in the hope that this time we can go before a tribunal.
I am beginning to feel however, that maybe they are right and Grace doesn't deserve higher rate DLA, the reason that they have lessened it, it is purely because she doesn't need extra care at night compared to a normal child, and apart from the IV's every 3 months and sometimes accidents in the bed and the nightmares and the overnight sats tests ..... I think they might be right.
Gilly ;-) xx
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