Looking back over the past few weeks, I have come to the conclusion that Grace has been to school for 6 days out of 5 weeks.

After she returned to school Tuesday (as Monday was too difficult) she started as she meant to go on and put her best foot forward etc..... and last night she was so exhausted that she felt physically sick, shakey and just couldn't move.

I phoned her nurse this morning just to pick her brains. The nurse felt that the combination of the cold weather, the busy time of year and just generally being the way she is with her 'funny episodes' was the factor. So with this in mind she has been told that she must do no after school activities and just have complete rest. I have pointed out that, generally she hasn't managed to do many of them for a couple of weeks anyway, and she is currently just finishing a week of 30 mg of prednisalone a day and is now on a week of 15mg. That doesn't seem to have helped.

So - sats 93, lung function 77% (probably best ever) and chest sounds clear, on her third week of cipro and 2nd week of booster steroids and nothing seems to be touching her and absolutely gets exhausted after just one day in school.

Bloods are going to be taken Friday to try and determine the cause, and if there is no improvement over the weekend, then they are going to try IV's (but for what?)

Earlier this month Graces blood sugars were monitored and were an unremarkable 4.2 after fasting and 6.2, 2 hours after a measured dose of lucozade.

If anyone is reading this information and feels they might know the cause, or if its just generally a Cf thing that we have to learn to manage then please feel free to comment. I am just so distraught that we can't get to the bottom of this and help Grace to just get through the week. I know she has CF, but at just 7 years old surely it shouldn't be this hard for her already?

We have bought a real Christmas tree and it has been in the house for 1 day, and she has complained a little of tightness in her chest, and hasn't complained before, I'm hoping its not the tree, but she doesn't normally have allergy related problems, and she hasn't complained today.

Just generally grasping at straws now as to what might be the problem, it might be that its something non CF related that has gone undetected, but what!!! Grace is so cross, that she has to stop dancing, piano, etc until the Newyear, just nativity rehearsals are allowed, but to be fair she has been missing lots of after school stuff too.