New year, new start

There have been some major changes in our household and the New year sees some of them put into effect almost immediately.



Firstly 'Dave' the wheel chair. So far we don't know if this has made much of an impact on Grace as we haven't really been anywhere of great distance, but the short very uphill journey to school in the mornings has been far less stressful. The first day back to school was a little scary for Grace, she was very self concious of being in a wheel chair, she kept saying "what if everyone keeps asking me why am I in a wheel chair and don't have a broken leg?" I told her to tell them that she had broken lungs and it made her laugh even though her legs were visibly shaking on the way because she was so nervous.

As the days have gone on she has become less worried by the whole situation.

Mark is hoping to make a career move early this year so lots of new territory to cover. I am nervous but hopefully things will be good.

Grace is due in clinic on Tuesday, she is a little off colour, but nothing major. the course of cipro finished Tuesday and she has gone back to azithromycin. The tummy pain has started all ready so I know that it coincides with azithro as she hasn't complained at all over christmas about tummy pain.

Getting Grace back to a early bed time routine has proved very difficult. She hates to be alone with her thoughts and gets upset and crys when left by herself. We have put some credit on her phone and told her to text us from upstairs if she is concerned about anything in particular, so she does, regularly, mostly to say she is feeling rather unwell and it would help if she could come downstairs to take her mind off things or could someone go up and lye with her.

As part of her Make-a-wish request Grace was asked if she could be anything what would she be? Her reply was - to be a spy, and she is certainly obsessive about spies and spy gadgets...............




Some more spywear for Christmas to add to her collection...................