Today I bought the Bumper Christmas edition of 'Thats Life' purely because Graces story of last Christmas was in there. I had numerous telephone interviews in which I spoke massively about CF and the plight of families and sufferers.
I then received another phone call in which they read the story to be printed back to me. I thought at the time - well it doesn't mention any of that, but atleast it is a plug for CF. So when I actually read it this evening and found that it had been altered somewhat since then too,some of it just made me laugh beyone belief. Do they really think that I know that little about CF that the Dr could fob me off with "she will really struggle to cough"? What a load of twaddle! Honestly I don't know why I bothered,they're clearly only interested in getting people to read their magazines and not highlight how pwcf suffer.
Well lesson learned......atleast we made £200 for charity.
If anyone wants to read it, its on page 11
About Me
- Gilly
- I am a parent of a child with Cystic Fibrosis. I don't go to work anymore. I was an administrator for many years but now feel I want to spend my time caring for my daughter. I have raised money for the cystic fibrosis trust through lots of channels from baking cakes to running the Hydro Active Challenge, and will continue to raise money and awareness as long as I can.
1 comment:
Aaaargh why do magazines and newspapers do this?! Well not all of them, but sadly a certain proportion. My local journalist spent an hour with me and managed to come up with an article that announced "Local Mum Who Lives With A Death Sentence" (no idea where the kids have got to...), informed everyone (including me) that apparently "Emma looks very pale, probably because she rarely leaves the house" (EH?!!) and also kindly informed the local population that "Emma is able to walk on the flat but if there is a hill her husband has to get behind her and push"! Hahahaha! The mind boggles! Well done for doing it though and for raising money for charity - every little helps as a certain supermarket says xxx
Post a Comment