Why when Grace was diagnosed at 13 months old and we were told we could apply for DLA, did they, without question give us the highest rate?
Why, now that she is almost 8, worse now than she ever was, be awarded middle rate?
Why? as much as we try, even though she spends days and excursions out in a wheelchair, can we not get mobility?
I've had enough now and I am going to the newspapers with our plight! I really am sick to death of red tape and systems put in place as to stop people from 'taking advantage' .................. I cannot believe how angry I am, and something has to be done now!! I can't understand how we need higher rate dla to get higher rate mobility, Grace can't walk for a normal 1-2 hour shopping trip and yet our mobility has been dropped to middle rate.
How do I make these fools understand for goodness sake?!
About Me
- Gilly
- I am a parent of a child with Cystic Fibrosis. I don't go to work anymore. I was an administrator for many years but now feel I want to spend my time caring for my daughter. I have raised money for the cystic fibrosis trust through lots of channels from baking cakes to running the Hydro Active Challenge, and will continue to raise money and awareness as long as I can.
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