Thursday 22 May 2008

I'm back again, and I'm still miffed about the physio comments from Birmingham. So if I get it off my chest then maybe it will go away.

Firstly I just wished I'd said to the physio " Well doh! I didn't buy the wheel chair off ebay, we were referred by our own team" I wonder if you can buy wheelchairs on ebay? I mean, our team wouldn't refer her if they didn't think she was having trouble would they?

I feel, as the hypertonic has been scrapped as if other things could be scrapped, as I feel that dnase is a waste of time and no matter what Grace takes, nothing makes a change. I know that people will tell me that she could be far worse if she wasn't taking them, and I know its true, but sometimes I just feel like saying "right I'm not going back to that hospital and they can make their half yearly input from her notes made in Coventry" apart from Dr W who does see Grace in Coventry and keeps a close eye on her. It happened last time we were there, the Dr that saw her in October said it was more or less our fault that Grace was so unwell because we obviously must be missing treatments or not doing them correctly. Do they think if you have cf or carry the gene then obviously you must be thick?

I, of course, don't really mean any of these things, but just wonder if all we are doing should just be cut down a little to see if she is just the same without them, and maybe have more time on her hands than she does presently........ I still mean the stuff about the physio though! pah!

Thats better .........sigh.............

5 comments:

Tinypoppet said...

Want me to slap her for you ;)

Speak soon

xx

suzie said...

Gilly you so should have started eating them jelly beans it would have been a hoot to be escorted from the place by security.

(((HUGS))) hunni, ignore the damn comments you're doing a great job.

xxx

Gilly said...

A slap would be good. I know I should ignore comments like that, but sometimes they just keep relvolving in your head.

Suzie could you imagine me being on the evening news for being escorted out of Selfridges for nicking the jelly beans.

Gilly x

suzie said...

I can just see the headline now.

Woman arrested for eating prize exhibition.

When questioned she pleaded it was all because of the physio, they'd let you off no problemo.

xxx

suzie said...

Don't forget to say 'Your honour' though, I left that bit out.