is currently lying upstairs in bed totally pooped after a bit of a session on the trampoline. She did manage to do a great sputum sample after it though.
She has had tummy pain on and off all day. I have given her warm boiled water and lactulose and a bit of a massage but so far, nothing.
It looks as though we are going to have to do the gastrographin tomorrow. Its starting to be a regular thing now. I can feel firmness in her tummy, but its just not shifting, hopefully if she has a clear out she will get some peace for a few months. Poor little thing just never seems to get a break lately.
When we went to clinic on Tuesday (the one that I almost forgot to attend) the nurse suggested that she maybe start school later or have one afternoon or perhaps even a day off each week to recharge her batteries...... she's not been in since Friday and she has already gone to bed at 5.30 today. I am off to go and sit with her now and keep her company................. I wonder who will fall asleep first?
About Me
- Gilly
- I am a parent of a child with Cystic Fibrosis. I don't go to work anymore. I was an administrator for many years but now feel I want to spend my time caring for my daughter. I have raised money for the cystic fibrosis trust through lots of channels from baking cakes to running the Hydro Active Challenge, and will continue to raise money and awareness as long as I can.
No comments:
Post a Comment